Let's get caught up

Ok, so here I am. Starting a blog for the first time. I'm doing this for everyone to keep caught up on Lucy and our family without me having to tell our stories one hundred times. And for those of you who aren't caught up let's start from the beginning...

When I was 25 weeks pregnant I went in to the doctor for my ultrasound to find out if we were going to be having a little boy or a little girl. Much to MY surprise the sonographer told Jeremy and I that our little "peanut" (still her nickname to this day) was a precious little girl. After she told us this, she took her wand and kept positioning it at different angles to see her little head. I didn't think anything of it but I was also too busy thinking about headbands and tutus. When my doctor came in and told me that "we needed to talk about my ultrasound" was when I knew something was very wrong. He told us he wanted us to get a second opinion but he thought she had Dandy-Walker Syndrome. Within an hour we were sent to Dr. Mandsager's office and it was confirmed that our little baby's brain hadn't developed all the way and she had no eyes. They told us our horrible options and did an amniocentesis. Later that week I got a call from Amy, Dr. Mandsager's assistant and she told me that Lucy's chromosomes are normal.

After these findings I had appointments every two weeks for ultrasounds to keep an eye on Lucy. We were hooked up with Ann Valdez with Prenatal Hospice and she was absolutley amazing! In one of our meetings with Dr. Mansager, Ann, the head doctor and nurse of the NICU we were told that Lucy wouldn't be expected to "make it" and to start planning what we wanted to do. This consisted of telling the medical team how much interference we wanted them to do with her after she was born. Jeremy and I both decided comfort care for her, which is letting God choose what he wanted without any medical interference. We also had to decide on a resting place and make funeral plans. In this meeting we were also told that they were looking at Walker-Warburg Syndrome for the diagnosis instead of Dandy-Walker which is also alot more severe. Needless to say these 4 months prior to Lucy's birth were very emotional for me, Jeremy, and our families and friends.


Lucy was born March 15th at 11:46 am with all of Jeremy and I's family waiting in the little hallway outside of my room. Keep in mind that Jeremy is the oldest of seven, on one side! Pastor Scott was there as well and baptized Lucy right away. We also lined up a photographer with the organization, Now I Lay Me Down To Sleep, who also happened to attend our church, the AMAZING Annie Weaver. She even made it in time to capture Lucy's first bath and pictures with her big sister Jadie. Here are just a few...

Lucy Mae Bowlsby

So here we are today, almost four months later with a beautiful little girl. She is doing so much better than expected and now after seeing a neurologist and going to genetics doctors in Iowa City, they don't think Lucy has Walker-Warburg Syndrome. We probably won't know for a while what exactly Lucy has but whatever it is she is perfect to us no matter what.

Thank you Beautiful girl, for completing me